| The following are recent publications
by USICD Board members:
Change from Within: International Overview of the Impact of
Disabled Politicians and Disability Policy Bodies on Governance
Edited by Barbara Duncan of Rehabilitation International and
Jennifer Geagan of the World Institute on Disability
Change from
Within is the final report of the International Disability Exchange
and Studies (IDEAS) Project for the New Millennium 1999-200w4.
Funded by the U.S. National Institute on Disability and Rehabilitation
Research (NIDRR) and published by the World Institute on Disability
(WID), the report examines the impact that disabled politicians
and disability policy bodies have on governance. The project
was directed by USICD Board Member, Kathy Martinez, of WID, who
also helped organize two international seminars on the topic.
Through interviews with elected and appointed officials from
13 countries around the world, the study explores how having
individuals with disabilities in positions of governance is influencing
the legal and social landscape in these countries. USICD Executive
Director Ilene Zeitzer wrote the analysis of the impact as well as conducted
the interviews with leaders from around the world.
The research revealed
that having people with disabilities in high positions of governance has many
positive outcomes that often result in more inclusive policies and programs
benefiting everyone in society. In addition, these
leaders often serve to educate and raise the awareness of their non-disabled
peers as well as to act as role models for others with disabilities. The report
also explores the different roles that disability policy bodies play in various
countries and includes information about issues such as access to voting. The
report is available in alternative formats.
For copies of the report, please
contact:
Jennifer Geagan
Jennifer@wid.org
Telephone: 510-251-4310
Fax: 510-763-4109
TTY: 510-208-9493
“Reflections from a Different Journey: What Adults with
Disabilities Wish All Parents Knew”
By Stanley D. Klein, Ph.D., and John D. Kemp, Co-Editors
“This book is a wonderful celebration of diversity.
The essays have important messages for all of us as we strive
to make our world a more caring, loving and peaceful place
for all children and families.” – From the
Foreword by Marlee Matlin
NEW BOOK FEATURES IDEAS FOR PARENTING FROM ADULTS WITH DISABILIITES
Most parents of children with disabilities lack personal experience
with adults with disabilities. Hearing from people who have lived
the disability experience can provide all parents with essential
information about the possibilities for their children. Reflections
from a Different Journey (McGraw-Hill, April 2004; Hardcover,
$18.95) edited by Stanley D. Klein, Ph.D., and USICD president
John D. Kemp, includes forty inspiring and realistic essays written
by successful adult role models who share what it is like to
have grown up with a disability.
Each eloquently written essay is an insightful source of wisdom,
inspiration, and emotional support as well as a rare glimpse
inside the lives and minds of people with many different disabilities—cerebral
palsy, Down syndrome, autism, learning disabilities, deafness,
blindness, mental illness, developmental disabilities, spina
bifida, muscular dystrophy, attention deficit hyperactivity disorder,
congenital amputation, and chronic health conditions.
In preparing their essays, the authors were asked to write about
something they wished their own parents had read or been told
while they were growing up. The essays, which demonstrate that,
first and foremost, people with disabilities are human beings
with the same needs and desires as people without disabilities,
are arranged thematically:
- “Love and Accept Me as I Am” essays express appreciation
for parents who provided unconditional love and a sense of
belonging and who accepted them as whole people—including that
part of them considered to be a disability.
- “Parents Are the Most Important Experts” essays
describe how their parents addressed their unique needs and
became the most important experts in their lives.
- “Parental Expectations” essays present different
approaches to expectations and standards and encourage every
child to have hopes and aspirations.
- “Sexuality” essays explore how all children need
to talk about and learn about intimacy and sexuality.
- “Education About Disability” essays explain the
importance of why parents and children need to learn all about
a child's disability and how to facilitate necessary accommodations
so that each child can enjoy a full life.
Brimming with a wealth of life-affirming lessons, “Reflections
from a Different Journey” offers many specific suggestions
for parents as well as older children with disabilities, family
members, and the education and health care professionals who
serve them.
Reviews:
“As the mother of a son with profound physical disabilities,
I want every parent of a child in similar circumstances to
read this remarkable eye-opening book. The lessons it brings
from adults with disabilities are essential to giving our
kids the start they deserve, and to understanding how close
their hopes and aspirations are to kids we see as ‘normal.’” – Judy
Woodruff, CNN
“A fabulous contribution to the field of disabilities.
Parents everywhere need to read this book. Everyone involved
with children with disabilities needs to read it. It answers
so many questions about what works and what doesn’t.
And it answers the questions in the most reliable manner — in
the voice of the son or daughter.” – Patricia McGill
Smith, former Executive Director, National Parent Network on
Disabilities
“The significant education for those helping, supporting,
advising, and motivating people with disabilities is in listening
to them. These writers with disabilities are brilliant in
portraying their lives with pathos and even humor. Professionals
and parents, trying to achieve equality for people with disabilities
must read this masterpiece.” – Henry Betts,
M.D., former Medical Director and CEO, Rehabilitation Institute
of Chicago
“Advice to parents about how to raise and guide their
children with disabilities is rarely offered in such a compelling
and insightful way as it is in Reflections From A Different
Journey. Nobody says it any better than people with disabilities
themselves when topics such as risk-taking, social acceptance,
envisioning a life of greater independence, and all the challenges
confronting any parent arise. These essays will educate, inform
and entertain every parent who wants to know how to be the
very best parent each can be.” – Senator Robert
Dole
For review copies, interviews, and more information, contact:
Ann Pryor, Publicity Manager at 212.904.4078 or ann_pryor@mcgraw-hill.com.
“Women with Disabilities Aging Well: A Global View”
By Patricia Noonan Walsh, Ph.D., & Barbara LeRoy, Ph.D.
What do women with developmental disabilities experience as
they age — and what can service providers and researchers
learn from their stories?
That question is the focus of this exceptional book, which weaves
informative research with the oral histories of more than 160
women in eighteen countries. Emphasizing that disability is not
a disease, the authors use their research and the personal stories
they collected to explore contributing factors to healthy aging
and suggest how professionals can help women with disabilities
live lives of dignity, respect, and community participation.
Readers will review illuminating statistics and discover how
women with disabilities around the world manage the everyday
issues they face, including
- economic factors such as securing employment, gaining economic
control, and financing living arrangements
- personal issues such as grooming, mobility, and support systems
- health and nutrition
- recreation
- relationships with family members and friends
- overall well being and quality of life
- disability policies and programs that influence all these
factors
With this expertly stitched quilt of common themes and experiences,
readers will have the cross-cultural perspective and research-based
facts they need to help ensure healthy aging for women with disabilities
and guide future research and policy.
ORDERING INFORMATION: http://www.brookespublishing.com/store/books/walsh-7152/index.htm
“Welner's Guide to the Care of Women with Disabilities”
By Sandra L. Welner and Florence Haseltine
With contributions from Barbara Duncan, Kathy Martinez, and
Ilene Zeitzer.
The guide is aimed at health practitioners and is available
from Lippincott, Williams and Wilkins.
Contributions by USICD board members include “Employment
Issues for Women with Disabilities: Opportunities, Programs and
Outreach Efforts” by Ilene R. Zeitzer and Barbara Duncan
and “The Blind or Visually Impaired Patient Seeking Health
Care” by Kathy Martinez.
“Foreign Policy and Disability: Legislative Strategies
and Civil Rights Protections To Ensure Inclusion of People with
Disabilities”
Eric Rosenthal and Arlene Kanter, Co-Authors
Published by the National Council on Disability (NCD)
This report is a follow-up to NCD’s 1996 Foreign Policy
and Disability report that found continued barriers to access
for people with disabilities in U.S. foreign assistance programs.
The new report reviews a number of models that Congress has adapted
for linking human rights and foreign policy that can be adapted
to ensure the inclusion of people with disabilities, and concludes
that inclusion of people with disabilities in U.S. foreign policy
will be achieved only when specific legislation is enacted to
achieve that purpose.
The report is available online at http://www.ncd.gov/newsroom/publications/2003/foreign03.htm.
“Building an Inclusive Development Community: A Manual
on Including People with Disabilities in International Development
Programs”
Edited by Karen Heinicke-Motsch and Susan Sygall
The manual is a toolkit for development agencies and others
concerned with the inclusion of people with disabilities at all
levels and in all areas of the international development process. It
includes expert opinion, techniques and guidelines, resource
lists, and examples of best practices from around the world.
Topics include:
- Accessibility issues
- Inclusion of disability in programs and service
- Budgeting for inclusion
- International policy
- Disability and development from regional and international
perspectives
- Disaster and emergency relief
- Gender and disability
- Community based rehabilitation (CBR)
- School inclusion
- Microfinance
Reviews:
“Building an Inclusive Development Community
is one of the best resources I have ever read. It is a must
for development agencies, donors and national and international
NGO’s and DPO’s. The comprehensively written book
has contributions from some of the most knowledgeable people
in the world…” – Judith
E. Heumann, Advisor, Disability and Development, The World
Bank
“Building an Inclusive Development Community,
Mobility International USA’s new publication… Combin(es)
expert opinion, practical strategies, examples of best practice
and useful resources, the book is an invaluable tool for
any organization working to ensure that strategies for poverty
alleviation and advancement of social justice reach people,
and especially women and girls, with disabilities whose voices
are often lost amongst the poorest of the poor.” – Mary
E. McClymont, President & CEO, InterAction
“There is no excuse for any organization
involved in international and community development not
to buy this book… Building an Inclusive
Development Community should be a required text for all university
students studying international development…” –
Amy T. Wilson, Ph.D., Program Director, International Development
Certificate, Gallaudet University
ORDERING INFORMATION:
Send $40 plus shipping and handling ($5
domestic, $12 international) payable in US Dollars via MasterCard,
Visa, check or money order to:
MIUSA
P.O. Box 10767
Eugene, OR, 97440
USA
Please indicate desired format [print or CD (in PDF)]. Alternative
format on CD or diskette available upon request. CONTACT INFORMATION:
Phone: (541) 343-1284 (voice/TTY)
Fax: (541) 343-6812
E-mail: info@miusa.org
For more information, please visit http://www.miusa.org/development/USAID/buildinginclusive.htm. |
